Hearing loss Flyer: French
April 19, 2024
Rare Diseases Diagnosis and Research in Africa: Genetic Literacy, Data Science Ethics and Socio-cultural Perspectives.
May 16, 2024Engaging to Build Trust in Genomics and Data Science for Health Research in Africa:
Case Studies, Best Practices and Lessons from the Field
29 April 2024; 15:00 GMT ( 16:00 WAT; 17:00 CAT; 18:00EAT)
Moderator
Dr Gill Black, Sustainable Livelihoods Foundation, South Africa
Speakers/Panelist
- Prof Paulina Tindana, University of Ghana School of Public Health
- Dr Olivia Matshabane: Department of Psychiatry, Stellenbosch University
- Dr Kengne Kamga Karen: Regional Hospital Limbe Cameroon; and University of Cape Town
- Dr Setlhomo Koloi-Keaikitse University of Botswana
- Mr Andrew Muniru Nantogmah, WACCBIP University of Ghana
Themes
- Docudrama as a public engagement tool in genomics for vulnerable populations
- Deliberative focus groups for genomics research
- Tele-documentary as a public engagement tool
- Cultural values and beliefs that may impact participation in genomic research.
- Challenges of community engagement in genomics and data science for health research in Africa
PUBGEM-Africa launched its virtual science and bioethics café with various experts on the provided subject. Experts discussed different ways tools and models used and adapted in building trust in indigenous populations or communities in health research. Particularly, they touched on multiple dimensions and dynamics that come into play when feedbacking health information. Additionally, researchers should be aware of local contextual factors which may influence participation in genetic research. Continued community engagement developed a sense of trust, that enabled collaboration between researchers and communities improving research activities.
